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Accomplishments
Major Accomplishments for Fiscal Year 2010
Research and Education
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Provided research support for the following:
• Established O'Leary-Wilson Autoimmune Disease Fellowship (three-year commitment), Johns Hopkins University, Baltimore, MD
• Provided grants for autoimmune research, University of California, Davis; Johns Hopkins University, including ongoing autoimmune liver disease research and crosscutting autoimmune disease research; and Massachusetts General Hospital
• Continued support of Johns Hopkins University Center for Autoimmune Disease Research, Baltimore, MD
• Sponsored six interns, Summer Diversity Internship Program, Johns Hopkins University, Baltimore, MD
• Published A Briefing Report on Autoimmune Diseases and AARDA: Past, Present, and Future, written by Larry Tobias, MSc, MBA
• Saw article (by Ian Mackay, Natasha Leskovsek, and Noel Rose) published in the Journal of Autoimmunity, "The odd couple: A fresh look at autoimmunity and immunodeficiency," inspired by AARDA symposium
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Education (Patient, Public, and Scientific)
• Sponsored "Immunodeficiencies and Autoimmune Diseases: A Scientific Colloquium," Baltimore, MD
• Cosponsored with the United Nations NGO, "The Global State of Autoimmunity Today," New York, NY
• Sponsored the "Autoimmune Diseases Summit: The Global State of Autoimmunity Today," Washington, DC
• Provided support for FOCiS (Federation of Clinical Immunology Societies) Annual Meeting, Boston, MA
• Provided support for the Resource Center for Autoimmune Diseases, Lupus Foundation of Pennsylvania, Scranton
• Sponsored the 12th Annual Autoimmunity Day, Johns Hopkins University Center for Autoimmune Disease Research, Baltimore, MD
• Sponsored AARDA Autoimmune Public Forums, "What Every American Needs to Know About Autoimmune Disease," Orlando, FL; Boston, MA; St. Louis, MO; Houston, TX; Cherry Hill, NJ; Cleveland, OH
• Provided support and/or speakers, International Vasculitis Patient Symposium, Long Beach, CA; Graves' Disease Foundation Patient Education Conference, San Diego, CA; 13th International Congress on Antiphospholipid Antibodies, Galveston, TX; 7th International Congress on Autoimmunity, Ljubljana, Slovenia; American Society for Reproductive Immunology Conference, Pittsburgh, PA
• Supported 20th Anniversary Scientific Symposium and Celebration, Foundation for the NIH, Office of Research on Women's Health, Bethesda, MD
• Supported "Autoimmunity and the Environment Workshop," National Institute of Environmental Health Sciences, Durham, NC
• Assisted more than 400,000 inquirers approaching AARDA via telephone, e-mail, postal service, Web site, and personal contacts at meetings and conferences, by supplying information and referrals
• Made available for purchase a DVD: Dr. Noel R. Rose, "What Is Autoimmunity?" and Rita Baron-Faust, "Women and Autoimmunity"
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Awareness and Advocacy
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Awareness
• Provided display and representatives, American College of Rheumatology Annual Scientific Meeting, Philadelphia, PA
• Provided awareness booth and representative at FOCiS 2009 meeting (Federation of Clinical Immunology Societies), San Francisco, CA
• Provided awareness booth and representative, 7th International Congress on Autoimmunity, Ljubljana, Slovenia
• Made available autoimmune information on the Web (social networking programs as well as its LinkedIn group)
• Designed (through an AARDA volunteer) an aarda.org marketing and communications plan with emphasis on eMarketing tools
• Reached nationwide audience through Ladies' Home Journal article
• Participated in an audio-streamed radio talk show, interview on "Coping Conversations," with Dr. Robert Phillips (nationwide distribution)
• Oversaw the development of an AARDA promotional video underwritten by Genentech
• Received media placements on the Fox News Web site
• Had on-air live interviews on Sirius Radio with Dr. Noel Rose and Dr. Betty Diamond
• Launched national awareness program, "We Are 50 Million"
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Advocacy
• Worked to increase significantly autoimmune research funding at the National Institutes of Health (NIH)
• Worked collaboratively with other patient groups through the National Coalition of Autoimmune Patient Groups (NCAPG) and the International Alliance of Patients' Organizations on issues of importance to patients
• Obtained designation of March as National Autoimmune Disease Awareness Month
• Provided testimony, "Moving Into the Future--New Dimensions and Strategies for Women's Health Research," Office of Research on Women's Health, Chicago, IL
• Advocated for various pieces of legislation having possible impact on autoimmune diseases
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Administration
• Conducted 10th Annual Victorian Tea fund raiser to realize a profit of $53,865
• Continued to expand autoimmune education and awareness through publication of InFocus, AARDA's quarterly newsletter
• Maintained active involvement with the National Health Council and continued to meet all NHC standards
• Maintained status as a Better Business Bureau Accredited Charity
• Continued "Best in America" certification by Independent Charities of America
• Maintained a Four Star Charity rating from Charity Navigator
• Contained administrative and fundraising costs combined at only 6 percent of total expenses (up to 25 percent considered acceptable for nonprofit organizations)
• Received $1,996,174 in contributions and in-kind services, representing 96 percent of total support and revenue (65 percent, in-kind services)
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