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Accomplishments
Major Accomplishments for Fiscal Year 2007
Research and Education
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Provided support for the following:
- Johns Hopkins University Center for Autoimmune Disease Research, Baltimore, MD, autoimmune liver disease research
- University of Southern California, "The Mouse Ortholog of LYP/PTPN22: Effect of an Autoimmune Predisposing Genetic Variant"
- Feinstein Institute for Medical Research, North Shore-Long Island Jewish Health System, Manhasset, NY, high risk autoimmune research
- Massachusetts General Hospital and Harvard Medical School, "Therapeutic Intervention That Reverses NOD Diabetes Followed by Pancreatic Regeneration"
- University of North Carolina at Chapel Hill, pemphigus research
- University of Pennsylvania, basic autoimmune disease research
- Multiple Autoimmune Disease Genetics Consortium (MADGC), North Shore University Hospital, Manhasset, NY, family data service support
- Lupus Multiplex Registry & Repository, Oklahoma Medical Research Foundation, Oklahoma City, OK, data support
- Sponsored AARDA Cell and Tissue Damage Scientific Workshop, Baltimore, MD
- Sponsored AARDA Autoimmune Public Forum, "What Every American Needs To Know About Autoimmune Disease," E.N. Rottenberg Patient Education Fund forums, in Baltimore, MD, and Buffalo, NY
- Sponsored AARDA Autoimmune Public Forum"Predicting Autoimmune Diseases," American Association for the Advancement of Science, San Francisco, CA
- Sponsored 9th Annual Autoimmunity Day, Johns Hopkins University Center for Autoimmune Disease Research, Baltimore, MD
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Sponsored, cosponsored, or supported the following:
- 5th International Conference on Autoimmunity, Sorrento, Italy
- Sjögren's Syndrome Foundation 2007 National Patient Conference, Reston, VA
- 2nd Interdisciplinary Sjögren's Syndrome Symposium, Buenos Aires, Argentina
- 15th Annual Congress on Women's Health, Hilton Head, SC
- 7th Annual Meeting, Federation of Clinical Immunology Societies, "FOCIS 2007," San Diego, CA
- Animal Models of Type 1 Diabetes and Multiple Sclerosis, New York Academy of Sciences, San Francisco, CA
- 12th International Conference on Antiphospholipid Antibodies, Florence, Italy
- 5th International Conference on Sex Hormones, Pregnancy, and the Rheumatic Diseases, Florence, Italy
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Advocacy and awareness
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Provided education and/or awareness materials for the following local events or groups:
- EL 541 Covered Bridge Bike Tour, Tualatin, OR
- Sjögren's Support Group, Frederick, MD
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WITT "Women in This Together Support Ministry," Rochester, NY
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Lupus support group, Atlanta, GA
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Vitiligo Support International, Williamsburg, VA
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"Howl at the Moon," Whitefish Bay, WI
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Laguna Hills Kiwanis Club, Laguna Woods, CA
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National Association of School Nurses, Nashville, TN
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American Academy of Pediatrics, San Francisco, CA
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American Public Health Association, Washington, DC
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American Society of Human Genetics, San Diego, CA
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The Lupus Foundation of Mississippi, Brandon, MS
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Sun City Arthritis Support Group, Bluffton, SC
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Health Connections, Bluffton, SC
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Continued Education for RNs Seminar, Selma, AL
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Circles Within Circles Foundation, Meadow Bridge, WV
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Lupus Support Group, Jonesboro, GA
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Provided speaker and materials for the Owens-Corning Employee Health Fair, Toledo, OH
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Provided sample materials for booth displays by the National Organization for Rare Disorders, Inc. (NORD)
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Provided display and materials at BIO CEO & Investor Conference, New York, NY
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Provided display, materials, and representative at the American College of Rheumatology Annual Conference, Washington, DC
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Planned and facilitated an Autoimmune Awareness Rally on the steps of the U. S. Capitol, in conjunction with the National Coalition of Autoimmune Patient Groups
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Developed and arranged for nationwide TV distribution, including the Hallmark Channel, of a PSA featuring Kellie Martin, "Do You Know Your Family AQ?"
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Saw Kellie Martin featured in an autoimmune disease message on the electronic board in Times Square, NY
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Made Internet distribution of "Know Your Family AQ" PSA, resulting in more than 34 million individuals accessing/receiving/reviewing the PSA
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Had broad distribution of "Know Your Family AQ" PSA on American Urban Radio Network (potential for reaching more than 20 million listeners)
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Laid the groundwork for 2008 implementation of an educational/awareness campaign "Men Get Autoimmune Disease, Too"
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Continued to sponsor the National Autoimmune Awareness Campaign, "What Every American Need to Know About Autoimmune Diseases"
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Granted interviews and materials resulting in articles published in Natural Solutions, USA Today, PRNewswire, The News Journal (Delaware)
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Administration
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Contained administrative and fund-raising costs at only 7.70 percent of total expenses (up to 25 percent is considered acceptable for nonprofit organizations)
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Received $1,993,199 in contributions and in-kind services, representing 99.5 percent of total support and revenue
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Expanded autoimmune education and awareness through publication of InFocus, AARDA's quarterly newsletter
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Assisted more than 400,000 inquirers approaching AARDA via telephone, e-mail, postal service, Web site, and personal contacts at meetings and conferences, by supplying information and referrals
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