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Accomplishments
Major Accomplishments for Fiscal Year 2011
Research and Education
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Research
• Surpassed the $2 million mark in funding for autoimmune disease research
• Continued support of O'Leary-Wilson Autoimmune Disease Fellowship (three-year commitment), Johns Hopkins University
• Provided grants for autoimmune research, University of California, Davis; Johns Hopkins University, including ongoing autoimmune liver disease research and crosscutting autoimmune disease research; Massachusetts General Hospital; Virginia Polytech Institute and State University; The Feinstein Institute for Medical Research; University of California, Los Angeles
• Continued support of Johns Hopkins University Center for Autoimmune Disease Research
• Sponsored five interns, Summer Diversity Internship Program, Johns Hopkins University
• Provided summer internship for medical student, Johns Hopkins University
• Provided conference grant to biochemistry/cell biology candidate, University of California
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Education (Patient, Public, and Scientific)
• Provided support for the Caribbean Autoimmune Disease Summit, Trinidad
• Provided support for FOCiS (Federation of Clinical Immunology Societies) Annual Meeting, Washington, DC
• Provided support for the Resource Center for Autoimmune Diseases, Lupus Foundation of Pennsylvania, Scranton, PA
• Sponsored the 13th Annual Autoimmunity Day, Johns Hopkins University Center for Autoimmune Disease Research, Baltimore, MD
• Sponsored AARDA Autoimmune Public Forums, "What Every American Needs to Know About Autoimmune Disease," New York, NY; Birmingham, AL; Cleveland, OH; San Francisco, CA
• Provided support for Foundation for the National Institutes of Health, Inc., for Office of Research on Women's Health 20th Anniversary Scientific Symposium, Bethesda, MD
• Provided support for Scleroderma Foundation of Michigan 2nd annual one-day public forum, Warren, MI
• Assisted more than 400,000 inquirers approaching AARDA via telephone, e-mail, postal service, Web site, and personal contacts at meetings and conferences, by supplying information and referrals
• Made available for purchase a DVD: Dr. Noel R. Rose, "What Is Autoimmunity?" and Rita Baron-Faust, "Women and Autoimmunity"
• Completed first of two educational modules designed for patients; posted on AARDA's Web site
• Maintained 24-hour toll-free request line
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Awareness and Advocacy
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Awareness
• Achieved designation of March as national Autoimmune Diseases Awareness Month
• Provided display and representatives, American College of Rheumatology Annual Scientific Meeting, Philadelphia, PA
• Provided awareness booth and representative at FOCiS meeting (Federation of Clinical Immunology Societies), Washington, DC
• Made available autoimmune information on the Web (social networking programs as well as its LinkedIn group)
• Implemented (through an AARDA volunteer) an aarda.org marketing and communications plan with emphasis on eMarketing tools
• Continued national awareness program, "We Are 50 Million"
• Provided radio and magazine interviews
• Held Congressional Staff Briefing, with National Coalition of Autoimmune Patient Groups, Washington DC
• Published a white paper, "The Cost Burden of Autoimmune Disease: The Latest Front in the War on Healthcare Spending"
• Accepted the invitation to join the Strategic Planning Committee of the NIH National Institute of Environmental Health Sciences
• Received national recognition through presentation of the Heritage Award of the Johns Hopkins University Alumni Association to AARDA President/Executive Director Virginia T. Ladd
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Advocacy
• Worked to increase significantly autoimmune research funding at the National Institutes of Health (NIH)
• Worked collaboratively with other patient groups through the National Coalition of Autoimmune Patient Groups (NCAPG) and the International Alliance of Patients' Organizations on issues of importance to patients
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Administration
• Conducted 11th Annual Victorian Tea fund raiser to realize a profit of $65,000
• Continued to expand autoimmune education and awareness through publication of InFocus, AARDA's quarterly newsletter
• Maintained active involvement with the National Health Council and continued to meet all NHC standards
• Maintained status as a Better Business Bureau Accredited Charity
• Continued "Best in America" certification by Independent Charities of America, • Maintained a Three Star Charity rating from Charity Navigator [AARDA was returned to a 4 Star Charity rating in June of 2012)
• Contained administrative and fundraising costs combined at only 6 percent of total expenses (up to 25 percent considered acceptable for nonprofit organizations)
• Received $1,633,533 in contributions and in-kind services, representing 94 percent of total support and revenue (59 percent, in-kind services)
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