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1. • CommentAuthordlowham
   • CommentTimeMay 13th 2009 edited

    # 1Report Post
   does anyone out there have sarcoidosis like i do would love to chat with you
2. • CommentAuthordebbyl
   • CommentTimeJul 16th 2009

    # 2Report Post
   I was dx. with Sarcoidosis as well as Polymyositis and Vasculitis. It is affecting my lungs and muscle fibers
3. • CommentAuthorpattibob
   • CommentTimeJul 29th 2009

    # 3Report Post
   I have been dealing with this disease for 6 1/2 yrs. It has pretty much destroyed my life. Thank God my husband is loving, understanding, and supportive. But it has been difficult for my 15 yr old son to deal with, I can't do the things I used to be able to do. I have chronic sarcoid, with severe pain to my lung regions. Pain meds help decrease level of pain, but nothing takes it away completely. I'm on oxygen and a CPAP machine when I sleep. major part of my life is spent in bed. At one point I was in a w/c, now only use a cane, so I guess there is that bright side :).