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December 6, 2018

Highlights from: “Self-Advocacy and Clinical Trials”

There’s so much more to clinical trials then what you hear about. Lilly Stairs joined AARDA to inform patients and dispel myths so that that you can be your best advocate in getting the care you deserve.

 

Watch the webinar here or download the slides with the notes. You can also contact Lilly at [email protected] for more information, or follow her on Twitter at @LillyStairs 

 

Highlights include:

  • Clinical trials are safe. There are many policies and procedures to ensure safety and full consent of the participants.
  • Non-medicinal trials. Trials are vast and wide-ranging, they include observational studies, diets, and devices.
  • The placebo myth. It is rare for participants to not get treatment. In the autoimmune disease community, the treatment being tested may have already been approved but there testing the impact on another autoimmune disease.

Visit www.clarahealth.com for more information and to get help navigating the clinical trial process. Participate in ARNet to contribute to patient-powered research and get connected to clinical trial or research study opportunities.

 

Click here to view the slides & notesthumbnail of Self-Advocacy & Clinical Trials

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