Our goal is to equip people with the knowledge to manage their rare disease, being #ConditionConfident in their diagnosis, and empowered through the knowledge we will provide during our events.
Twitter Chat #ConditionConfident Monday, February 25th 7 pm ET. Missed it? No problem! Just go to Twitter, search #ConditionConfident and keep the conversation going!
Join in and see what others have to say about getting their diagnoses, advice for people still seeking a diagnosis, and of course the importance of being #ConditionConfident
“Knowledge Is Empowerment” Webinar Saturday, March 16th 3 pm ET. You can register for free here!
During this live discussion, meet the team members from all collaborating groups, including Parker Lentini, and IFAA volunteer Linda, who has dealt with hard-to-treat rheumatoid arthritis (R.A.) for decades. We will also talk about genetic testing and treatment options, including clinical trials.
Join us to continue the conversation, as we focus more specifically on Juvenile Arthritis and family challenges with detection, diagnosis, and treatment.
We will be addressing any lingering questions, and providing resources to empower you with the knowledge to be #ConditionConfident
Be part of the discussion and, together, we can be part of creating solutions!
Learn more about these excellent organizations
Clara Health We exist to help you access breakthrough clinical trials. We believe that all patients should have the power to access the most advanced healthcare available. But we understand that getting started on the journey can be overwhelming. That’s why we built Clara to be the simplest, fastest, most patient-friendly way to connect you to the newest treatment options. And that’s why we work every day to help bring more clarity to this space. Because your health is the most important thing. We are Clara and we’re here to help you every step of the way.
International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA) International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA) is made up of change agents. We use our voices to identify and solve the most pressing community problems affecting education, advocacy, and research. We are not representing the patient voice, we are the patient voice. We believe that our voices today will change the stories of tomorrow to be those of early diagnosis, personalized treatments, common remission, and a world that understands the type of arthritis associated with our diseases.
Purple Playas Foundation The mission of the Purple Playas is to provide support and resources in the area of pediatric complex chronic care needs and gifting smiles to children and their families. We provide social-emotional resources and information on coping with medical trauma to support families and children impacted by chronic illness and provide funding and resources to providers/families of children with chronic illness to bring smiles to children’s faces.
This project was made possible by the financial support of Clara Health and Enzyvant. All thoughts, opinions