July 1, 2020

Autoimmune In The Family: Don’t Dismiss Your “Mom Radar”

I’m sure many of you reading this will understand when I say I feel like a detective with an honorary medical degree desperately trying to put […]
June 24, 2020

Celiac-Fibro-Type 1 Diabetes’ Life Lessons of Confidence & Bravery, From Mother To Daughter

Being a mother with three chronic illnesses (type 1 diabetes, celiac disease, and fibromyalgia) feels “normal” to me the same way that being a college student […]
June 18, 2020

“You Can Handle This. I Promise.” :: Why Adding Play, Risk Taking and Resilience Training Helps Your Autoimmune Life

Only folks who have been diagnosed with an autoimmune disease understand what I am about to say:  Getting the diagnosis of both Celiac and Hashimoto’s resulted […]
June 9, 2020

Addison’s Disease & Celiac Mom Story: “The Autoimmune Snowball”

I was 32 years old.  I had just survived a miserable pregnancy and rough delivery, but instead of gaining my strength back and enjoying this new […]
June 4, 2020

Hate Being Too Tired To Play With Your Kids? Tips For Managing Energy In Daily Life

Energy management and balancing expenditure versus conservation is an important issue for even the most healthy among us.  For those suffering from autoimmune disease, for whom […]
June 1, 2020

Editors’ Choice Award: AARDA Events Allow Philanthropic Couples to Spread Awareness About Common Diseases & Spend Time Together

May 25, 2020

No Apologies Needed: Making Space, Improving Health

Throughout ten years of clinical practice in the healthcare of women, I’ve had such a variety of experiences. Some of them were amazing, like witnessing childbirth. […]
May 22, 2020
US Capitol

Take Action for Autoimmune Disease

May 20, 2020

The Personal Story of a Mom of Twins Diagnosed with M.S.

In 2006 when my twins were five months old, I was diagnosed with relapsing-remitting multiple sclerosis (M.S.). I was/am still able to drive and that was […]
May 19, 2020

COVID-19: A Time to Use Your Autoimmune Superpower to Help Others

May 14, 2020

How To Get Your Joyfulness Back As An Autoimmune Mom

Autoimmune mom Donna Jackson Nakazawa was tired of being sick. Her kids were growing up and preparing to go off to college while she was just […]
May 11, 2020

INSIGHT: Mary McGowan Executive Director of the Myositis Association (TMA)

May 9, 2020

Autoimmune Self-Care Mantra: You Can’t Do It All (So Stop Worrying About It)

  In the time it has taken me to craft this sentence I have had to change a nappy, put a tired baby to bed, comfort […]
May 8, 2020
AARDA.org

Statement from Randall Rutta, President and CEO, American Autoimmune Related Diseases Association on HHS Approval of Notice of Benefit and Payment Parameters Rule

Washington, D.C. (May 8, 2020) – Randall Rutta, President and CEO of the American Autoimmune Related Diseases Association, released the following statement on HHS’ decision to move forward with a rule that allows health insurers not to count copay assistance toward out-of-pocket maximum limits for medications:

“On behalf of millions of patients living with autoimmune and chronic diseases, their families, and the healthcare professionals who care for them, we are deeply disappointed by the Administration’s finalization of the 2021 Notice of Benefit and Payment ParametersSpecifically, allowing health insurers to not count copay assistance support from drug manufacturers towards patient annual cost-sharing limitations is harmful at a time when so many people are struggling personally and financially. We should be doing everything we can to ensure that patients have affordable access to the medicines they need. This move is counterproductive for millions of patients and families.

“AARDA opposed the proposed reversal earlier this year, urging HHS to retain the copay assistance policy that helps patients cover out-of-pocket costs for medicines, allowing them the ability to maintain stability in health conditions, avoid exacerbations or relapses, and achieve continuity of care. We strongly believe now, as we did then, that patients should not be punished for accessing such assistance.

“We urge the Administration to reconsider its decision and recognize the reversal will cause unnecessary hardships and risks to health and wellness. We will continue to work with CMS and policymakers to highlight the importance of changing course on this rule.

“Now more than ever, those dealing with serious, rare, and chronic conditions need assurance that they can access necessary medications without unnecessary costs. Refusing to count copay assistance from drug manufacturers toward out-of-pocket cost limits will result in major health setbacks and unmanageable financial burden for millions. In the midst of a global pandemic, patients deserve better from Washington.”

May 8, 2020

AARDA’s Statement on HHS Approval of Notice of Benefit and Payment Parameters Rule