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May 29, 2019
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Primary Care Physicians Now Have Resources to Diagnose a Rare Autoimmune Disease: Relapsing Polychondritis
June 2, 2019

You Can Be an Advocate for Autoimmune Disease Research

Everyone has the power to make change happen. You can impact the future of the autoimmune disease community. Advocate for more autoimmune disease research funding.


You are probably well aware of the challenges facing the autoimmune disease community. Among the biggest problem, today is the lack of funding to research this category of disease. These diseases are difficult to diagnoses, they overlap and are often misunderstood by both the medical community and the public. Well over one hundred conditions are considered to be an autoimmune disease or closely related, and most on our list are considered to be a rare disease. All of these factors make research and understanding of autoimmune disease so critical, not just for any lab or researcher, but to be done on a larger, strategic and fully through scale. That is why we are asking for autoimmune disease research to included and funded in the 2020 fiscal year federal budget.


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Contact your U.S. Senators and Representatives to encourage them to support the passage of the FY 2020 Appropriations legislation that includes increased funding for greater research on AD. This includes $8 million for the Department of Defense Congressionally-Directed Medical Research Program for an autoimmune disease priority and dedicated program, and $3 million for the National Institutes of Health (NIH), Autoimmune Diseases Coordinating Committee (ADCC) to expand, and support of autoimmune disease research across the NIH. These funds will support focused research in the root causes of all AD, accelerate needed innovation, intervention, treatments, and initiate steps to reduce the negative impact of autoimmune disease on personal health, productivity, and the high cost of healthcare.


The intricacies and overlapping nature of autoimmune disease means advancement for one autoimmune disease has a ripple effect for the others. Advancing research into the category of AD means throwing a boulder into the research pond rather than a pebble of a single disease. Use your voice to help secure more funding for autoimmune disease research.

Sign up for our VoterVoice alerts or contact your representative and tell them to support increased autoimmune disease research funding.


Sign Up for VoterVoice Here


Looking to do more? Share this with your community; friends, family, coworkers, and share on social media.


Not sure what to say? Our VoterVoice system has template letters and will guide you on finding your representative. Or if you prefer here are some tips on what to include:

  1. Your experience living with an autoimmune disease,
  2. Your belief that research is important, and
  3. Your request that increased funding be allocated to the NIH and DoD, as described below.

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