Fatigue Survey Results ReleasedMarch 23, 2015
Autoimmune Disease Awareness MonthJuly 1, 2015
“New Trends in Autoimmunity for Patients, Researchers and the American Public” highlights from “The State of Autoimmune Disease: A National Summit’ held on March 23, 2015 at the National Press Club in Washington, D.C. One of the features of the summit was the report on Autoimmune Disease and Fatigue: What’s the Connection?
- Research Highlights include providing nearly five million dollars in funds for peer reviewed basic autoimmune research and donor directed specific disease research/fellowships.
- Patient Education Highlights include handling more than 400,000 inquiries per year via phone, email, mail and the internet and developing over 80 patient education information pamphlets.
- Advocacy Highlights include initiating, supporting and facilitating the National Coalition of Autoimmune Patient Groups (NCAPG), a coalition of 38 national voluntary health agencies which represent specific autoimmune diseases.
- Public Education Highlights include working with longtime AARDA celebrity spokesperson Kellie Martin who stars in public service and social media campaigns, speaks at patient forums and advocacy events and participates in media interviews.
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