The State of Autoimmune Disease: A National Summit Report Released

The State of Autoimmune Disease: A National Summit Report Released

Highlights from AARDA Summit 2015“New Trends in Autoimmunity for Patients, Researchers and the American Public” highlights from “The State of Autoimmune Disease: A National Summit’ held on March 23, 2015 at the National Press Club in Washington, D.C. One of the features of the summit was the report on Autoimmune Disease and Fatigue: What’s the Connection?  

  • Research Highlights include providing nearly five million dollars in funds for peer reviewed basic autoimmune research and donor directed specific disease research/fellowships.
  • Patient Education Highlights include handling more than 400,000 inquiries per year via phone, email, mail and the internet and developing over 80 patient education information pamphlets.
  • Advocacy Highlights include initiating, supporting and facilitating the National Coalition of Autoimmune Patient Groups (NCAPG), a coalition of 38 national voluntary health agencies which represent specific autoimmune diseases.
  • Public Education Highlights include working with longtime AARDA celebrity spokesperson Kellie Martin who stars in public service and social media campaigns, speaks at patient forums and advocacy events and participates in media interviews.
Read the entire Summit report
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Patricia Barber
Patricia Barber
For the last 20 years, Pat has been helping patients and caregivers live better lives, advocate for change, and Virginia's "right hand" making sure the "i's" are dotted and the "t's" are crossed. She lives in Michigan and couldn't picture herself doing anything but helping the autoimmune community.