Highlights from the National Summit on Autoimmune Disease

Highlights from the National Summit on Autoimmune Disease

On March 21st, 2018 AARDA hosted a National Summit on Autoimmune Disease. Despite the inclement weather, the event went on almost exactly as planned.

Presentations were made in relation to current advocacy and research areas in the autoimmune disease community.

Below are some highlights of those presentations, and at a later date, we will be releasing videos taken from that day.

 

 

 

 

Changing the game for Sjögren’s patients: Strategies, techniques, and

implications

Steven Taylor- Chief Executive Officer, the Sjögren’s Syndrome Foundation (SSF)

See the presentation here

 

 

 

 

Congressional and regulatory outlook, including Medicare Part D

Stephanie Hales- Partner, Sidley Austin LLP

 thumbnail of 2018 AARDA Summit Meeting Congressional and Regulatory Outlook (Hales)

 

 

 

Emerging issues in patient access: What patients and patient advocates need to know about copay card changes, high deductible insurance plans, and access to treatment

Michael Ybarra, M.D., FAAEM, FACEP- Deputy Vice President of Advocacy and Strategic Alliances, PhRMA

thumbnail of Accumulator Adjustment Programs_

 

 

Patient-powered advocacy

Lilly Stairs-Head of Patient Advocacy, Clara Health

 

 

 

 

 

 

 

Research panel with Dr. Elad Shron — Cancer, Autoimmunity, and Immunology

Listed below by order of appearance in the photo above from left to right.

 

Jaydira Del Rivro, M.D.-Staff Clinician Pediatric Oncology Branch

Download the presentation here

Patrizio Caturegli, M.D., M.P.H.- Associate Professor of Pathology, Johns Hopkins University School of Medicine

Javid Moslehi, M.D., Assistant Professor of Medicine at Vanderbilt School of Medicine

Download the presentation here

Michael L. Dougan, M. Director of the Immunotherapy Mucosal Inflammation Program, Massachusetts General Hospital

Download the presentation here

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