Autoimmune Research Network – ARNet

The Autoimmune Research Network (ARNet) is an autoimmune disease patient registry. ARNet will empower patients by facilitating their participation in research on autoimmune disease. ARNet is a project of the American Autoimmune Related Diseases Association (AARDA) in collaboration with members of the National Coalition of Autoimmune Patient Groups (NCAPG).

People often suffer from more than one autoimmune disease which suggests there are common disease pathways. By creating a common research tool and collaborating with many different autoimmune disease groups, we hope to raise general autoimmune disease awareness and increase clinical research participation.

The patient data/information is collected through an organization. The data is stored and protected by the NCAPG member group where the survey was accessed. If your data shows that you may be qualified for a study, the member group who “houses” your information will contact you directly to provide you with information about the research and how to participate. Your personal information will NEVER be shared without your consent. Only “anonymized” information is shared with potential researchers. For example, "anonymized data" means a researcher would be able to find out how many 34-year-old females have a certain autoimmune disease but NOT the names/contact information of those women. If the researcher wants to contact them, the researcher contacts the group(s) where the survey originated and that group will contact the women to see if they would like to participate.

Why is ARNet important?

Scientific Knowledge

Expand and improve scientific knowledge on the immune system.

Help Doctors

Help doctors learn why patients often suffer from more than one autoimmune disease.

Earlier Diagnosis

Help develop tests that reduce the time for diagnoses.

New Treatments

Help find new drugs and other treatments for these diseases

How Many

Determine the prevalence of these diseases to reveal the true impact of autoimmune diseases.